I haven’t been online or up to posting anything. I haven’t really been doing well - emotionally or physically. I’ve come to agree with my injection nurse when he said that he usually doesn’t encourage that newly diagnosed MS patients get too involved with MS activities early on in the diagnosis,…
My GP is incredibly understanding of young people and how our minds work, and how we deal with this sort of diagnosis differently to ‘grown ups’, so all the way through she’s encouraged me to ‘not Google things’ and ‘keep my blinkers on’. I have to say that I agree with her, and after a few years of diagnosis I am definitely glad that both she and my neurologist both discouraged me at the start from being too confronted by situations. I think it helped me to accept things ‘gently’ and now that I’m a little older I’m a little braver too when it comes to the more confronting discussions and considerations of my illness. Still not enjoyable, especially since everyone I know with MS was diagnosed at a much older age, and has many more issues resulting from the disease than I do, but I think it’s made it a bit easier in my mind to separate myself and my prognosis from theirs.
Take care of yourselves everyone, and look out for yourself first - if you don’t feel comfortable, don’t put yourself through it :)